Born In Burrwood

William has Supraventricular Tachycardia, Tachycardias are rhythm disorders in which the heart beats faster than normal. They are generally not life threatening unless you have other heart disorders. But because of Williams history and the fact that he gets dizzy and lightheaded, short of breath and has pain with it makes it dangerous for him. They gave him some meds to get him through the holidays but are setting up an appointment in Madison to have a procedure where they go up through his groin into his heart and see what’s going on. They can follow his beat and see the electric current that is making his heart speed up like that and fix it. They said he has 3 options. Take meds, have the procedure done or do nothing. Because he has dizziness, pain and shortness of breath I don’t think doing nothing is a good idea. I’m not crazy about taking the medicine Diltiazem for very long either. He has a low blood pressure normally anyway and that medicine can lower it eve...

Yesterday William had 3 palpitations very close together, He pushed the button on the monitor and then called like he was told to do. He puts the monitor to the phone and sends the report and they in turn  sends it to someone who reads them from what I understand.  A little while later his dad calls here and said they called him and said to call and make an appointment for him and that he should see a doctor as soon as he can. They did say that people who have had surgeries like he has had sometimes has this problem and that he's ok but needs to have a doctor check him over.  I know that's probably true and I'm trying to stay positive but gosh it's hard to do that. I think the thing that bothers me the most is that he says it hurts and is painful. I hope he can get in right away tomorrow and not have to wait a few days. I'm glad he has the monitor and I'm glad he had these palpitations while he has it. I hate that he's having these issues but at least this...

William got the heart monitor yesterday. When he feels his heart racing he pushes the button on it which transmits it to whoever reads it. If it’s ok they do nothing but if they feel there’s something wrong they will call us and either tell us to make a Doctor’s appointment or get to the ER immediately. He told us that he had two episodes the day before his appointment and another one at the doctors just before he got the monitor but nothing since. I asked him if it hurt and he said it did. I asked him if he could describe the pain but he couldn’t. He said it wasn’t a stabbing pain and it didn’t feel like there was something heavy on his chest, he just couldn’t describe it for me. He had a valve repaired when he was 4 and now that he’s 18 I am wondering if something is going on with that. They did tell us when he had his surgery that he may have to have it replaced when he’s an adult but I am hoping he won’t have too until he’s much much older. I know they know what they ...

Another worry that’s on my mind and is more serious is William. He told me a couple weeks ago that he’s been noticing and feeling that his heart feels like it  is racing and is sometimes painful. I asked him if it happens a lot and he said it use to happen once in a while but lately it’s been happening more often. Needless to say my heart took a nose dive. We were shopping when he told me so as soon as we got home I called his dad and told him about it and for him to make a doctor’s appointment for him. His appointment is today and I pray to God that they say it’s all a normal thing for him and that all is okay. I’ll be a nervous wreck until he gets home and I find out what the doctor said. So that’s what’s been keeping me busy. I have to catch up with all of you and find out how you guys are doing. Hope you’re doing well. Love & Hugs